Artist statement by Noam’s mother, Simona Sivkoff-Livneh
In 2016 at the age of four, Noam suffered his first tonic-clonic seizure. Since we don’t have a history of epilepsy, we did not know what was happening to him. Following five random seizures that summer, he was diagnosed with idiopathic seizure disorder. Luckily, he responded to medication and remains seizure free. Nevertheless, the events profoundly changed our lives and I have been fighting for acknowledgement of his “invisible” disability.
Noam was turned away from summer camps, and our anxiety over the unpredictability of the onset of his seizures was often met with disbelief, as Noam is a gregarious, funny, and highly intelligent child without visible signs of neurological issues,
Noam has been drawing since he was two years old. I hope that Noam’s artwork will show the face of another young boy, who suffers with epilepsy and that it can help other families in dealing with such neurological issues and all that they entail. We have been moved by the efforts of Hidden Truths Project to raise awareness and support the people who suffer with epilepsy and their loved ones.