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Universal Auras

My name is Ingrid Pfau, and I am not afraid to share that I have active epilepsy. After all, I am a filmmaker who works with people with disabilities in Birmingham, AL at the National Center on Health Physical Activity and Disability (NCHPAD). My journey toward understanding that I had drug-resistant epilepsy happened at the University of Alabama, Birmingham (UAB), where after 10 years of unsuccessful drug treatments, I had stereoEEG (SEEG). Accepting that my hair would vanish, 14 electrodes were drilled into the temporal region of my skull and brain and left there for 10 days. During this time, I could not walk out of my hospital room and had multiple tonic-clonic seizures. My comprehensive epilepsy care team found where my seizures were coming from—the whole point of an SEEG. Unlike most people, I asked to have everything that was used during the procedure given to me as a gift when I left UAB.


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